Witam na moim blogu. Mam na imię Asia. W 2010 roku zdiagnozowano u mnie rzadką chorobę – nerwiakowłókniakowatość typu 2 (neurofibromatosis type II, NF2). Miałam wtedy 29 lat. Trudno wyrazić słowami co wówczas czułam – ogromny żal, ból, bezsilność… Choroba pokrzyżowała moje plany życiowe, odebrała możliwość uczestniczenia w sytuacjach, które dawały mi radość. Musiałam dokonać wyboru – poddać się lub wyjść jej naprzeciw. Wybrałam drugą możliwość. Postanowiłam też bez względu na wszystko cieszyć się tym, co mam, korzystać z każdego dnia, który jest mi dany. Zrozumiałam, że życie to wspaniały dar i nie mogę go zmarnować.
Prowadząc blog chciałabym podzielić się z Wami
swoimi myślami, emocjami i spostrzeżeniami, pokazać, jak odbieram teraz
życie. Traktuję go również jako szansę nawiązania kontaktu z innymi
osobami, mającymi podobne problemy oraz pewną drogę poszukiwania nowych
możliwości leczenia. Jeśli przy okazji uda mi się tchnąć w kogoś chociaż
odrobinę wiary, nadziei i entuzjazmu, to będę bardzo szczęśliwa.
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ABOUT ME AND MY BLOG
Welcome to my blog. My name is Asia. In 2010 a rare disease was diagnosed in me –neurofibromatosis type II, NF2. I was 29 years of age. It is difficult to tell what I felt then – immense sorrow, pain, helplessness … The disease disrupted my life plans, deprived me of chances to participate in situations that used to make me happy. I had to make my choice – surrender or take the challenge. I took the second option. I also decided that whatever happens, I would be happy with what I have, enjoy each day given to me. I understood that life is a magnificent gift and I must not waste it.
Keeping this blog I would like to share my thoughts, emotions and observations with you, show how I perceive life now. I also treat this blog as a chance to make contact with other people with similar problems and a way to search for new treatment possibilities. Should I manage to give at least a little belief, hope and enthusiasm in someone on this occasion, I will be really happy.
________________________________________________________
ABOUT ME AND MY BLOG
Welcome to my blog. My name is Asia. In 2010 a rare disease was diagnosed in me –neurofibromatosis type II, NF2. I was 29 years of age. It is difficult to tell what I felt then – immense sorrow, pain, helplessness … The disease disrupted my life plans, deprived me of chances to participate in situations that used to make me happy. I had to make my choice – surrender or take the challenge. I took the second option. I also decided that whatever happens, I would be happy with what I have, enjoy each day given to me. I understood that life is a magnificent gift and I must not waste it.
Keeping this blog I would like to share my thoughts, emotions and observations with you, show how I perceive life now. I also treat this blog as a chance to make contact with other people with similar problems and a way to search for new treatment possibilities. Should I manage to give at least a little belief, hope and enthusiasm in someone on this occasion, I will be really happy.
